I'm struggling today and the family event scheduled tomorrow seems beyond the limits of my health. I desperately want to attend so today has to be quiet.
I wake and slowly get ready for the day. I am not planning on going anywhere so do not bother showering in the morning. My hair needs washing at some point today but I'll leave that to the evening. I manage to get dressed and spend some time listening to The Rent Collector on Audible. It is easy to lie on the bed and take in the words.
I want to feel productive. I want to feel like I am achieving something more than sitting and watching or sitting and reading. I decide to go through old digital files. I am ridiculously bad at deleting the photos I will never use in a million years. For some reason, the blurry, over-exposed, I-have-no-idea-what-this-is-a-photograph-of pictures still remain in folders on my hard drive instead of being deleted and making space. I am very much aware that I need to back up my computer at some point in the near future. It is on my to do list, I just don't get round to it. One of these days, I am going to regret putting it off so long!
My Handsome Man invites me to play golf. We haven't played card games in an age so I agree. We play nine rounds rather than eighteen. Nine rounds give me enough of a headache that I need to take a break.
After card games I really need to rest. My Handsome Man is having a down day today - we all have them (me winning at cards probably didn't help!). This evening we decided to have a date night at home. We chose a movie (Birdman - his choice), got some treats, and watched together before I showered and got ready for bed.
My last day of a Week in the Life really wasn't an exciting one. It was a regular day of me trying to pace myself. It was a day of few photographs because I didn't have the energy to use the camera. It consisted of me being aware of plans in the future and knowing I have done too much this week to prevent me from feeling heavy symptoms after the event.
This week is a week in my life, a week that was more on the active side than normal. I pushed myself, energy-wise, so I could celebrate my birthday. I am still paying for doing so. Add to that the family event and I will probably spend most of next week recovering.
This is my life. I am incredibly lucky to be married to My Handsome Man. I hope that those who have followed along this week will have gained a little more of an understanding of what it is like to have M.E.. I hope that you see how I have to conserve energy, and the cost of pushing myself too much.
My week included only a few of my symptoms. I was fortunate sleep-wise. I have weeks where I struggle with insomnia and act (and look) like a zombie throughout the day. I have days where headaches are so severe I can't move my head. I have days of nausea, and very little appetite.
This is just an insight into my life with M.E.. I hope that next time you meet someone with Myalgic Encephalomyelitis you will understand the things that they deal with on a daily basis a little better.
I am grateful for the health I do have, and for the adventures I am able to go on. My life might seem limited to you but I will forever be grateful for the ability to leave my house, no matter the cost for doing so. I know there are others with M.E. who aren't so fortunate.